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0347/2024 - The burden on caregivers of children hospitalized in pediatric intensive care units in Rio de Janeiro: prevalence, vulnerabilities, and potential actions by primary health care teams
Sobrecarga de cuidadores de crianças que estiveram internadas em unidades de terapia intensiva pediátricas no rio de janeiro: prevalência, vulnerabilidades e possibilidades de atuação da atenção primária à saúde

Author:

• Marcela Cancio de Ponte Rodrigues de Souza de Oliveira - Oliveira, M.C.P.R.S - <enfa.maoliveira@gmail.com>
ORCID: https://orcid.org/0009-0007-4684-7521

Co-author(s):

• Claudia Leite de Moraes - Moraes, CL - <clmoraes.uerj@gmail.com>
ORCID: https://orcid.org/0000-0002-3223-1634
• Daniela Porto Faus - Faus, D.P - <daniela.faus@me.ufrj.br>
ORCID: https://orcid.org/0000-0002-4952-7327
• Michael Eduardo Reichenheim - Reichenheim, ME - <michaelreichenheim@gmail.com>
ORCID: https://orcid.org/0000-0001-7232-6745
• Maria Clara de Magalhães-Barbosa - Magalhães-Barbosa, M.C - <mariaclaramb201@outlook.com>
ORCID: https://orcid.org/0000-0002-4726-9782
• Arnaldo Prata-Barbosa - Prata-Barbosa, A. - <arnaldoprata@outlook.com>
ORCID: https://orcid.org/0000-0002-4726-9782
• Fernanda Lima Setta - Setta, F.L - <felimasetta@gmail.com>
ORCID: https://orcid.org/0000-0001-9171-2043


Abstract:

Care Units (PICU) and the increased survival of children, there is a growing interest in studying the challenges of caring after hospital discharge. The objective of the study is to estimate the prevalence of caregiver burden among relatives of children who have been in PICU, considering their sociodemographic profile and the child\'s clinical conditions. Methods: Cross-sectional study with relatives of children admitted to public and private PICUs in Rio de Janeiro (n=339). Interviews were conducted in person and/or by telephone 60 days after discharge. Caregiver burden was assessed using the Zarit Burden Interview. The Chi-square test was used to evaluate the heterogeneity of proportions in subgroups. Results: 41.3% of relatives presented burden. The prevalence was higher among unmarried caregivers, those without religion, caregivers of children not attending daycare/school, relatives of children who developed new morbidities during hospitalization, and those with low social support. Conclusion: The high prevalence of caregiver burden in certain subgroups necessitates that Primary Care teams be attentive to identifying the most vulnerable, prioritizing them in actions aimed at promoting the health of the entire family.

Keywords:

Caregiver Burden; Intensive Care Units; Primary Health Care.

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Oliveira, M.C.P.R.S, Moraes, CL, Faus, D.P, Reichenheim, ME, Magalhães-Barbosa, M.C, Prata-Barbosa, A., Setta, F.L. The burden on caregivers of children hospitalized in pediatric intensive care units in Rio de Janeiro: prevalence, vulnerabilities, and potential actions by primary health care teams. Cien Saude Colet [periódico na internet] (2024/Oct). [Citado em 26/01/2026]. Está disponível em: http://www.cienciaesaudecoletiva.com.br/en/articles/the-burden-on-caregivers-of-children-hospitalized-in-pediatric-intensive-care-units-in-rio-de-janeiro-prevalence-vulnerabilities-and-potential-actions-by-primary-health-care-teams/19395



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