Author:

• Daphne Sarah Gomes Jacob Mendes - Mendes, DSGJ - <daphnesarah1997@gmail.com>
ORCID: https://orcid.org/0009-0006-3229-8923

Co-author(s):

• Miguel Ângelo Montagner - Montagner, MA - <montagner@hotmail.com>
ORCID: https://orcid.org/0000-0001-9901-0871
• Maria Inez Montagner - Montagner, MI - <inezmontagner@hotmail.com>
ORCID: https://orcid.org/0000-0003-0871-7826
• Sandra Mara Campos Alves - Alves, SMC - <sandra.alves@fiocruz.br>
ORCID: https://orcid.org/0000-0001-6171-4558
• Maria Celia Delduque - Delduque, MC - <mcdelduque@gmail.com>
ORCID: https://orcid.org/0000-0002-5351-3534

Abstract:

Albinism is a large group of hereditary diseases in which the skin's production of
melanin is reduced or absent. Social invisibility represents a real challenge for people
with albinism in obtaining appropriate health care. The aim of this research was to
analytically encompass what the scientific literature reveals on the subject, by means of
an Integrative Literature Review (ILR) in the SciELO database. Nineteen original
articles were included, available in full and covering topics such as: culture; social,
family and economic aspects; human rights and life experiences. The results were
categorized into epidemiological characteristics, symbolic perspectives and social
rights. It was found that epidemiological estimates are inconclusive and imprecise,
without official census data. Cultural symbolism is deeply rooted in myths, legends and
ancient beliefs, which contributes to stigmatization and discrimination, as well as being
used to justify acts of violence. Violations of social rights are frequent and legislation is
often not effectively enforced, becoming a mere dead letter. It is crucial to ensure the
implementation of public policies and social practices based on equity, dignity and
social justice.

Keywords:

Albinism; Integrative Literature Review; Public Health; Social

Content:

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